2023 PCORI Annual Meeting, October 4-5

Poster Session

“A Framework to Understand Economic Impacts on Patients and Caregivers”

The purpose of this study, presented on Wednesday, October 4th, is to develop a framework that offers guidance on how to incorporate full range of economic impacts on patients and caregivers into comparative effectiveness research and patient-centered value assessment.

View our related poster presented at the 2023 AcademyHealth Annual Research Meeting (ARM), June 24-27, 2023.

VIEW PCORI POSTER

Economic Impacts Framework

IVI, in partnership with AcademyHealth, released a joint report, “A Research Framework to Understand the Full Range of Economic Impacts on Patients and Caregivers,” for researchers, value assessors, and other decision-makers to address the full range of economic impacts on patients. This report was made possible through funding support from the Eugene Washington PCORI Engagement Awards program, an initiative of the Patient-Centered Outcomes Research Institute® (PCORI®).

Download the Full Report          Download the Executive Summary

Background

The health economic burden on people in the United States is significant. According to the Peterson-KFF Tracker, Americans owe nearly $195 million in medical debt, and these financial burdens are worse for middle aged and BIPOC people. According to the Milken Institute’s Partnership to Fight Chronic Disease, chronic disease costs the U.S. economy over $1 trillion annually.

When healthcare researchers measure the economic impacts on people in the healthcare system, they often focus on direct medical costs such as hospital bills, co-pays, and deductibles. However, patients and caregivers experience a wider range of economic impacts, such as costs of transportation to receive care, ability to work, or behavioral health concerns.

The Innovation and Value Initiative (IVI) and AcademyHealth have partnered to develop a framework for researchers, value assessors, and other decision-makers to address the full range of economic impacts in research studies and decision-making.

For more information on this initiative, please contact Erica Malik at [email protected].

Project Objectives

To identify key actions and promising approaches needed to incorporate full range of economic impacts on patients and caregivers into research on comparative effectiveness and patient-centered health technology assessment.

Approach

IVI and AcademyHealth, in partnership with the Economic Impacts Steering Committee have gathered insights and recommendations from a wide range of stakeholder experts to develop and validate the development of the framework.

Steering Committee

  • Jennifer Bright, MPA (IVI)
  • Richard Chapman, PhD (IVI)
  • Elizabeth Cope, PhD, MPH (AcademyHealth)
  • Gwen Darien (National Patient Advocate Foundation)
  • Kathryn Davidson, MSW (CMMI)
  • Margo Edmunds, PhD, FAMIA (AcademyHealth)
  • Omar Escontrias, DrPH, MPH (National Health Council)
  • Juan Marcos Gonzalez Sepulveda, PhD, MS (Duke Clinical Research Institute)
  • Maureen Hensley-Quinn (National Association of State Health Policy)
  • Tom Hubbard (Network for Excellence in Health Innovation)
  • Laura McClung, PhD (UCB, Inc.)
  • Sharon Phares, PhD, MPH (National Pharmaceutical Council)
  • Laura Pizzi, MD (ISPOR)
  • Elridge Proctor, MPA (GO2 Foundation for Lung Cancer)
  • Abby Sears (OCHIN)
  • Cristie Upshaw Travis (HealthCareTN)
  • Gretchen Wartman (National Minority Quality Forum)

Additional Resources