Authentic Patient Engagement

Patient engagement, once described as the “blockbuster drug of the century,” is a critical component of value-based healthcare. It underscores the important shift towards patient-centered care that prioritize active involvement of patients in their healthcare journey. By putting patients at the center and collaborating with them to inform decision-making, we can improve health quality, health outcomes, and ultimately, lower costs.

IVI has adapted the following definition  of patient engagement: “The active, meaningful, and collaborative interaction between patients and researchers across all stages of the research process, where research decision-making is guided by patients’ contributions as partners, recognizing their specific experiences, values, and expertise.”

Learn More

For more information about this program, please contact IVI’s Director of Patient Engagement, Ushma Patel, at ushma.patel@thevalueinitiative.org.

Patient Engagement at IVI

IVI has a sustained history of prioritizing authentic patient-centricity as a core principle that guides and shapes our work. A key component to putting authentic patient-centricity into practice is partnering and engaging with patients throughout our convenings, programs, and research process.

Patients and Caregiver Partners

  • Collaborate with, inform, and direct research initiatives
    • IVI research initiatives start with patient and caregiver partners as co-leaders early in research formation and throughout the research process and dissemination.
    • IVI incorporates the patient voice on multi-stakeholder steering committees and on projects.
  • Share their stories, present, and collaborate
    • Patients and caregiver partners are collaborators in IVI events, reports, thought leadership, and research.

 

We hope to learn from and collaborate with people with lived experience to ensure that our work stays true to our core principle of patient-centricity and sets a benchmark for the health technology assessment field on the authentic practice of patient engagement.

STEERING COMMITTEE

International Foundation for Autoimmune and Auto-Inflammatory Arthritis (AiArthritis)
Tiffany Westrich-Robertson
Health Hats
Danny van Leeuwen
Patient Advocate (formerly Foley & Lardner LLP)
Richard Seiden, JD
Sick Cells
Mariah Scott, MS
TPAC Consulting
Claire Sachs, MA
Alliance for Aging Research
Beth Mathews-Bradshaw
The Assistance Fund
Stephanie Marshall
EveryLife Foundation for Rare Diseases
Annie Kennedy
Arthritis Foundation
Anna Hyde, MA
Coalition of Skin Diseases
Kelly Barta
Independent Consultant
Adam Thompson
ExPPect
Suzanne Schrandt, JD