Since the organization’s inception, IVI has prioritized authentic patient-centricity as a central tenet to its mission: to advance the science, practice, and use of patient-centered health technology assessment (HTA) to support decisions that make healthcare more meaningful and equitable. IVI established early leadership in engaging patient partners in governance and research collaboration through its Patient Advisory Council. In 2021, IVI published its Principles for Value Assessment in the U.S. to articulate how we put into practice the mission and goals of the organization. Our work continues to emphasize that HTA must sustain authentic patient-centricity.
IVI has identified four strategies to help put this principle into practice:
- Patients and caregiver partners co-lead the governance and strategic vision of the organization. We welcome new and diverse voices in our work.
- Lived experience and principles of health equity inform and have equal weight in all research, convenings, and thought leadership.
- The organization will commit resources and support to ensure that patients and caregivers are full partners in all research and organizational initiatives.
- The organization will evaluate the impacts of patient/caregiver partnership on the organization and on research findings and adjust our approach accordingly.
For each of these strategies, IVI – in partnership with its Patient Advisory Council, Board of Directors, and patient collaborators – has developed a checklist to evaluate both the quality and impact our partnerships with patient advocates and caregivers in our organizational practices, research projects, and engagement activities.
By holding ourselves accountable to our principles and implementing concrete tools to improve our approach, we hope to learn from and collaborate with people with lived experience to ensure that our research, engagements, and organizational structure stay true to our principles of patient-centricity and set a benchmark for the VA/HTA field on principles and authentic practice of patient engagement.